Design como contribuição na comunicação de doenças raras: uma abordagem de apoio a pacientes e familiares com Granulomatose com Poliangiite

Abstract

This Final Course Project investigates how design can act as a mediator in communicating information about Granulomatosis with Polyangiitis (GPA), a rare and little-known disease in the Brazilian context. The project starts from the observation of the scarcity of accessible and understandable materials aimed at patients, family members, and caregivers, highlighting the need for communication strategies that reach the lay public regarding medical knowledge. Based on a theoretical-practical approach, grounded in Design Thinking and Service Design, the study seeks to develop user-centered solutions, valuing empathy, clarity, and informative reception. As a result, an informative book about GPA was developed, aiming to present the disease in a simple, didactic, and reliable way, assisting in the understanding of symptoms, diagnosis, and treatment. The design process included stages of research, reference analysis, content structuring, and definition of accessible language, resulting in an inclusive and sensitive educational material.