Doença de Parkinson precoce e as mudanças na vida do paciente e da família: relato de experiência

Abstract

Introduction: Parkinson's Disease (PD) is a neurodegenerative pathology with a high prevalence worldwide. Its motor and non-motor symptoms directly affect the daily lives and activities of the patient. Being progressive and irreversible, it significantly compromises the Quality of Life (QoL) of individuals and their families, especially caregivers. Objective: To describe how Parkinson's Disease can interfere with the quality of life of the patient and their family. Method: A descriptive study of the experience report type, grounded and structured from the perspective of a nursing student, daughter of a patient with an early-onset Parkinson's Disease diagnosis. The narrative is validated by bibliographic review and reflective analysis of the scientific literature. Results: The results highlight the multidimensional impact of Early-Onset Parkinson's Disease, emphasizing the impairment of work capacity in precision activities and the emergence of non-motor symptoms, such as sleep disorders and cognitive decline. It was observed that the diagnosis profoundly altered the quality of life of the patient and their family, generating burden on caregivers and socioeconomic tensions. Final considerations: The progression of the pathology compromised the patient's professional identity and social life due to motor limitations and chronic pain. Within the family context, the diagnosis imposed a physical and emotional burden on caregivers, in addition to financial challenges arising from treatment. This report reinforces the importance of a biopsychosocial approach, integrating mental health as an indispensable pillar for the patient's physical well-being and functionality.